20 January 2013
-Functional Neurological Disorder - (FND)
F rightening how fast these functional symptoms came on
U nder a microscope of assumptions she was flung
N o information given on how to get better
C an't say how long she'll be under the weather
T remors are debilitating, to say the least
I have to watch the one I love accept her defeat
O n good days I see, that familiar smile in her eyes
N othing can take that away and that's forever my prize!
A lways and forever, in sickness and in health
L ove is the cure, our only true needed wealth
N eurology is vast, professionals don't seem to have a clue
E ndless seizures I watch, willing her to pull through
U nderlying pain, an everyday battle
R eliant on so many tablets, she's starting to rattle!
O n bad days I feel, the weight of her pain and frustration
L et's see how many people have heard of FND all through the nation?
O bserving her day and night, 24/7, guarding her night terrors becomes my obsession
G ritting her teeth with pain, yet a smile she keeps, though a sufferer she is
I nspirational to say the least, so grateful the support, of which she now has heaps!
C haos forever in her mind, therefore in busy places she needs time
A nother day to conquer, another mountain to climb
L abelled with this thing and sent on her way, left to do her own research and hope to see a better day
D isabled by this disorder, she has had to become so reliant
I ntact she tries to keep her spirits, whilst facing this giant!
S ometimes she feels like its time to give in
O rdeals she faces daily are so hard to take on the chin
R aising awareness is helping her now, to focus on the good
D ancing was her passion, now do anything to help others she would
E agerly hoping to raise greatly appreciated awareness for
R esearch needed to help sufferers worldwide re-open life's doors!.
http://www.facebook.com/JessicaSherwoodFndSufferer
Carers Perspective • Opuss № I