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Dealing With Disability.

This is written for my beautiful daughter!! From her perspective I hope I do it justice :)

I don't like that bright light,
And that loud noise fills me with fright,
I'm confused wait what's that smell,
I don't like it can't you tell,
I get angry quite a lot,
Can I tell you why? No I cannot,
I don't even know why,
Sometimes I scream shout and cry,
It makes me feel better,
At school I can barely read a letter,
It's frustrating,
Complicating,
I say things I don't mean,
Especially when I shout and scream,
I line my toys up in a line,
When they get knocked down it is a crime,
I hate the tags in my clothes,
I don't know why no one knows,
I like things to stay the same,
If they're not you're the one I blame,
I cannot tell the time,
So rely on you to tell me everything's fine,
Days of the week I cannot sequence,
You do sensory circuits as part of my treatment,
My weighted blanket is the best,
You give it to me to unwind and de-stress,
Today I like cheese tomorrow I may not,
I'm sensitive to temperature thinking things are too hot,
A tiny cut hurts like hell,
Over sensitive to pain as well,
My life is a jigsaw with scattered pieces,
My anxiety increases,
When I don't understand,
You are there to hold my hand,
My life is pretty confusing,
But I never give up Im refusing,
Always have a smile on my face,
Dealing with disability with huge dainty grace.

sammielee46

@sammielee46

Hi I'm Sam!!! Kik: sammielee46... "Dance lightly with life" - Jonathan Huie // "Wisdom begins with wonder" - Walt Whitman.

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Comments & Feedback (24)

This is such a worthwhile post, it explains to us all how difficult life is for her and for you too. I too had a child with a handicap and was once told that it's not just the child with the handicap, it's a handicapped family. Everyone in the family suffers in one way or the other, but there are positives too! Well done, great post! ☺😽

Brilliant write Sam πŸ‘πŸ‘πŸ‘ well done hun πŸ‘β€πŸŒΉ

@crowncottage thanks, It certainly keeps you on your toes, she has new triggers everyday. Thing is I get a lot of weird looks from other parents because the disabilities she has are internal, she doesn't look disabled at all. I give up explaining her behaviour to other people. Because they don't listen and don't believe me half the time. Niquita is perfect in every way to me and I wouldn't change her for the world!! :) thanks so much for your kind comments :)

@leelee101 thanks honey :)

This is so profound and sounds like my son. Does your daughter have Aspergers or autism by any chance? My sons 17 and we only found out when he was 15. Your poem has taught me even more ways he has to deals with this confusing world.

@originalkitten she's on the autistic spectrum, she had sensory processing disorder, auditory processing disorder, language disorder and learning difficulties. There's so much more to her than this poem but I didn't want to ruin it by rambling on!! I'm glad it helps someone :) if you need anything you know where I am, and you can find my kik username on my profile :) thank you honey :) x

Has not had*

Niquita...such a beautiful and special name...my son was diagnosed with high functioning Aspergers when he was 6...it was a fight as he can just appear aloof and rude at times...only us at home saw the stress and anxiety he would get...he is doing remarkably well and we are so proud of him, ignore the negativity as you have done, cherish your daughter as you have and I wish you well my sweet...a great post πŸŒΉπŸ‘βœ¨β€

@misslittleDHP thank you, Niquitas the same, she doesn't understand social boundaries, one minute she can be smothering and the next she is distant and can appear rude, narrow minded people don't get it, I've even had people telling me that I'm making excuses for her. She's just being herself, it's unfortunate that this world is ignorant to hidden disabilities!! Thank you so much my lovely, glad to hear how well your son is doing!! It's challenging but so rewarding when you get the little things right :) x

An excellent piece πŸ‘πŸ‘πŸ‘πŸ˜ƒ

@glen thanks honey :)

@minxyMolly thanks for reposting sweetie :) x

Excellent piece, and I think it just makes her all the more special ❀

@sjw it does to me :D thank you honey!! Xx

I really like your work

@Kuraudoh thanks Hun :)

Beautiful piece xx

@PoppyA thanks honey :) and for the rp :)

Well done. This is a really special poem explaining how difficult it is for children on the spectrum. πŸ’š

@eddie12309 thanks honey, hope I did it justice :) x

@HenryThad thanks for reposting hun :)

@sammielee46 very good indeed Sam! Identify a lot on here with my son ❀😘

@gazplend thanks sweetie glad people can relate :) xxx

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@RichWithey thanks honey and thanks for the lovely rp :) xx

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